Our mission is to help the families enduring Rett Syndrome, and assist in finding a cure.
Our Story
On January 10, 2008, our daughter, Ella Foard, was diagnosed with Rett Syndrome.The devastation and boldness of the news was felt by all of us. We thought of all the milestones that Ella would not have and the “normal” life that was taken from her. But with most parents, we made a decision in that moment—to be there for our daughter.
As much as we wanted to dwell in anger and sorrow of this news, we couldn’t—we had to find the hope, the strength, and the resiliency to start another day and be parents to Ella and her older sister, Emma. We decided to live life with the purpose of making a difference and that is why the Ella Foard Foundation for Rett Syndrome was created. Our mission is to help the families enduring Rett Syndrome, and assist in finding a cure.
“The goal of the Ella Foard Foundation is to create additional public awareness of Rett Syndrome in the hopes of raising funds for more research and a cure. The government doesn’t put much funding behind it because it’s so rare.”
What We've Achieved
10+
Years established
Ella Foard Foundation was created in 2009 and became a 501c3 that same year.
700+
thousand Dollars Donated
The Ella Foard Foundation has raised and donated over $700,000 for research to the Rett Syndrome Foundation.