A cure for Rett Syndrome is within reach and that the treatments for symptoms of Rett Syndrome may be available much sooner.
On January 10, 2008, our daughter, Ella Foard, was diagnosed with Rett Syndrome.The devastation and boldness of the news was felt by all of us. We thought of all the milestones that Ella would not have and the “normal” life that was taken from her. But with most parents, we made a decision in that moment—to be there for our daughter.
As much as we wanted to dwell in anger and sorrow of this news, we couldn’t—we had to find the hope, the strength, and the resiliency to start another day and be parents to Ella and her older sister, Emma. We decided to live life with the purpose of making a difference and that is why the Ella Foard Foundation for Rett Syndrome was created. Our mission is to help the families enduring Rett Syndrome, and assist in finding a cure.