Our mission is to help the families enduring Rett Syndrome, and assist in finding a cure.
Our Beliefs
A cure for Rett Syndrome is within reach and that the treatments for symptoms of Rett Syndrome may be available much sooner.
Our Purpose
To help fund research for the treatment and cure for Rett Syndrome
To increase public awareness of Rett Syndrome
Our Passion for Involvement
Our daughter, Ella, was diagnosed with this disorder on January 10, 2008. Instead of living life like it was over for John, his wife Nalisha, and the rest of their families, they decided to live life with the purpose of making a difference. John and his wife Nalisha helped establish the Ella Foard Foundation for Rett Syndrome with other families to do just that.
We had all the right milestones: her first crawl, her first word, her first step, but soon things slowly began changing. Ella would prefer to stand alone and rock back-and -forth for hours while her sister and cousins played right beside her. Ella didn’t say the typical 2-3 toddler phrases, but instead would revert to nonverbal cues to communicate. Regardless of how fast we would spin Ella in our arms, she didn’t hold on tight.
