board members

John Foard - Board of Trustees Chair
Patrick O’Connor - Board of Trustees Treasurer
Nalisha Foard
Crystal Draper
Grant Goodwin
Chris Webb
Scott Sofsian Al Lazo

Scrolling Facts

Fact 6

Rett is as prevalent as Huntington’s Disease, Cystic Fibrosis, and ALS.

Fact 5

A child is born with Rett Syndrome every 90 minutes.

Fact 4

Approximately 96% of cases arise due to spontaneous mutations in the MECP2 gene.

Fact 3

90% of kids who have Rett are girls.

Fact 1

Rett Syndrome strikes all racial and ethnic groups.

Fact 2

Children with Rett lose skills they’ve acquired between the ages of one and three years.